Caregiving Resources

Caregiver Resources

Trusted Tools for
Trach Families

Access emergency checklists, home care guides, supply trackers, caregiver support, and trusted medical resources for families navigating trach care.

How We Support Families

Support for Every Part of the Journey

Choose the path that best fits what your family needs right now.

Financial Relief

Helping families cover trach-related supplies, equipment gaps, and urgent needs.

Resource Navigation

Connecting families to trusted information, providers, and services.

Community Support

Creating connections among trach families who understand this journey.

Caregiver Library Resources

Helping families navigate care, support, and systems.

Knowledge is power—it can be life-changing.

Educating parents on available medical, educational, and community resources
Helping families navigate home nursing and school support
Connecting them to programs they are entitled to—but often unaware of

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Emergency & Quick Reference

Trach Emergency Checklist

A step-by-step guide for airway emergencies.

Emergency Bedside Card

Keep this printed near your child at all times.

Getting Started at Home

Hospital-to-Home Checklist

Everything needed for discharge and early home care.

Trach Supply Checklist

Checklist to verify needed supplies.

Caregiver Support

Caregiver Survival Guide

Managing exhaustion and emotional stress.

Trusted Medical & Trach Resources

Recommended by The Little Trachs Foundation
These resources are widely used by leading pediatric hospitals.

Cincinnati Children’s Hospital Medical Center

Provides comprehensive tracheostomy care guidance, caregiver training, and hospital-to-home transition resources.

Children’s Hospital of Philadelphia (CHOP)

Offers tracheostomy home care guides, emergency airway instructions, and daily care protocols for families.

WellChild Tracheostomy Care

Offers step-by-step home care guidance, equipment use, and caregiver support for families.

Boston’s Children Hospital

Provides parent handbooks, equipment checklists, and discharge planning resources for trach care.

Global Tracheostomy Collaborative

Offers emergency checklists, safety tools, and best practices for tracheostomy care.

Childhood Tracheostomy Resources

Provides comprehensive education on pediatric tracheostomy care, safety, and daily management.

UC Davis Pediatric Tracheostomy Education

Offers hospital-based guidance on trach care, procedures, and caregiver training.

Aaron’s Tracheostomy Page

One of the most comprehensive and longstanding resources for parents, offering practical guidance on daily trach care, equipment, and real-life experiences.

Laryngeal Cleft Network

While focused on laryngeal clefts, this organization offers valuable resources for families of children who also require tracheostomies, including education, advocacy, and support.

Courageous Parents Network

Provides expert-led videos, podcasts, and practical guides for families caring for children with serious illnesses, including those requiring long-term respiratory support.

Nationwide Children’s Hospital Trach Safety Guide

Practical guidance on keeping children safe at home, during bathing, feeding, travel, and play.

Lurie Children’s Tracheostomy Care at Home

Trusted education and guidance for families learning to manage trach care after discharge.

Nationwide Children’s Hospital Trach Safety Guide

Practical guidance on keeping children safe at home, during bathing, feeding, travel, and play.

Ann & Robert H. Lurie Children’s Hospital Tracheostomy Care at Home Guide

Comprehensive home-care education covering suctioning, trach changes, skin care, emergency preparedness, equipment management, and daily care routines.

Do you have a preferred trach site that could help others?

Please share it here and we will add it to our resources.